What are the best ways to support my autistic child?

Here are some common questions people have about autism and answers I wished I had when my child was initially diagnosed in 2016.             

  1. What are the best ways to learn about autism? Learn about autism from the experts: autistic people. Follow #actuallyautistic people or check out NeurodivergentRebel.com. I wished I had done this first.

When you learn about autism from people who are actually autistic, rather than those who are “experts” who’ve only observed autism, your understanding will profoundly change for the better. How will your understanding change if you learn from autistic people about autism?:

Instead of fearing this “mysterious” puzzle-like situation going on (as it is often presented by clinicians), you will be amazed at the beauty and power of neurodiversity. There are many autistic adults who are proud of who they are and gladly share their stories with you. Search #actuallyautistic on any social media platform and prepare to be amazed. Many autistic people are incredibly articulate and often their “inability to communicate with others” was actually just a misinterpretation on the part of people in power, like Braus. But I implore you, please just listen.

Process later.

And don’t argue with the real experts about what being autistic means. Only autistic people are in a place to explain their experience.

  1. How do I learn about autism? Remind yourself that you’re trying to learn about a neurology that has been brutally pathologized for a long time. Your core beliefs will be challenged and it’s normal to be uncomfortable. 

Many of my fears about autism were unfounded because I took a clinical approach to my understanding. Autism is still medically referred to as a disorder (Autism Spectrum Disorder), not a different operating system (think Mac vs PC). In your quest for information about autism you might not “see” any answers because of an inappropriate approach that autism is a disorder. It’s not. It’s just a different order than many people are accustomed to. I now refuse to call autism a disorder. Autistic people are in perfectly fine order. I just didn’t comprehend what I was looking at because I spent way too many hours reading clinical studies about how different it was from a specific neurotypical standard that was set by neurotypicals.

Autism is not a terminal disease. But it’s often treated like that because of how “experts” like to talk about it. “Tell-tale signs” or “symptoms” are not called traits.

  1. Parenting and autism. Autism isn’t a moral failing on the parents’ part, nor a choice by your child. If you find yourself feeling like a failure or wanting to blame your kid for “misbehavior”, see #2.
  1. What are the best ways to help my child who is autistic? Autism presents differently in each person and is dependent on their support system and unique needs. A parent who helps their autistic child helps them build on their strengths and honors their unique needs. If you only focus on deficits, that is all you will see and that doesn’t actually help anyone. 
  1. How do you know if a therapy is right for your autistic child? If you’re not sure if a therapy/treatment/doctor is right for your autistic child, just replace “autism” in their advertisement with any other inherited trait and see how it sounds. “Curing Brown Eyes with Natural Supplements” sounds pretty stupid, huh? How about “Fighting Irish Heritage with [insert name of ‘expert’ doctor here]”? You can’t cure your inherited traits and you don’t need to. 

Hope this helps. Follow @sensationalstims for more info!

Helping Autistic and Neurodivergent People

This is a glossary that is available in my latest work The Case of Sensational Stims.

Included are many terms and concepts I wished I had known when our child was diagnosed as autistic.

If these can help one family better support their neurodivergent loved one, then this effort was not in vain. You can download, print and even make text bigger by clicking the + button on the documents below.

These pages and more are available at the end of my latest book The Case of Sensational Stims. Order it today on amazon! See more at sensationalstims.com

PS- Thank you to Ashlyn Garrett for designing this. Check out her portfolio!

Vanity of Vanities

I once went to an interfaith event where a rabbi briefly discussed an excerpt from Ecclesiastes:

Vanity of vanities, says the Preacher, vanity of vanities! All is vanity. What does man gain by all the toil at which he toils under the sun?

Sometimes when I read this above verse from Ecclesiastes or related writings, I feel frustration at the lot of human existence and the futility of it all. I especially feel this way when look at the state of America and how the powerful and weak respond to challenges.

Also, the fragility of life has been on my mind frequently. A few young friends of mine have recently passed in very tragic ways. Another friend in his 30s has a very serious medical condition that for the moment has left him debilitated. All of these people have young families. In these past few weeks, I have once knowingly and once unknowingly worked with teenagers who determined the world would be better without them here. It’s these occurences that remind me of this scripture.

In English the word vanity has an extremely selfish implication. The rabbi explained that “vanity”, commonly used in English translations, is not the best word choice to interpret the passage. It’s true. “Vanity” does not help me see the wisdom buried in this verse. The rabbi went on that a better translation would be the word vapor or breath. He asked the group to think about breathing on a mirror- how the breath is there, then vanishes. He said that’s more the original intention.

Vapor is there and in a flash, is gone- kind of like life is. When I replace the word “vanity” to “vapor” in this excerpt, I see and feel something different. One word changes the whole meaning for me.

Somehow my mind opens up with this new word. I am reminded of an October a few years ago when my grandfather celebrated his 94th birthday. At nearly midnight that same day, a baby boy was also born into my family. One lived through The Great Depression and one will likely hold multiple jobs that don’t even exist yet.
Here we have two beings at total different phases of the life cycle, but both amazingly magnificent. Totally different, but they both began the same way. And though taboo to mention, they will both end, too.

Every day I get up and essentially do the same things- I eat, I bathe, often I laugh, sometimes I cry. I breathe in, then out. I sleep. I live a lifetime in a day. I do everything to get to a certain point, yet still seem to always stay in the same place. I try my best and am still my imperfect self. Every day. It’s miraculous.

I breathe in. I breathe out.

I am here now and then I won’t be.

It’s worth noting that Ecclesiastes continues:


9 What has been is what will be, and what has been done is what will be done, and there is nothing new under the sun. 10 Is there a thing of which it is said, “See, this is new”? It has been already in the ages before us. 11 There is no remembrance of former things…

It is tempting to read this and say everything we do is futile and ultimately selfish. But I think that interpretation would be in vain. There are some new things, after all. I think about medical progress and how we can successfully operate on the brain, a luxury millions of prior generations did not have. But still, those same millions have helped us get to where we are today.

But maybe that’s not what this scripture is about. Maybe this verse is how each person must live their unique life cycle. With that comes the good and bad, joy and heartache, gain and loss, sickness and health. These ebbs and flows are our life’s cycle. Collectively, yes, humankind should do things differently and learn from our history as those who practice medicine try to do. It seems as a global group, we are unable to learn social mistakes that have occurred throughout history.

Perhaps the reason why progress is so slow is that individuals are all indpendently doing the best we can to live out our own life’s cycle. Maybe that indivudality is part of our problem. Or maybe it’s just how we humans intrinsically are and that’s the point Ecclesiastes.

Humans are naturally inclined to vanity- we tend to be excessively prideful in our own achievements and appearance, which can make the quality of our being seem worthless or futile. Though it’s an unhealthy outlook, humans seem naturally inclined to this approach. Maybe this is why vanity was used in the English translation- not as a slam to mankind- just an utterance of truth. We are inclined to vanity.

It’s interesting the things we accept, support, and celebrate. It’s also interesting to note the things which we do not celebrate. We don’t expect infants to know how to walk when they’re born even though millions have come before them.

Perhaps life wouldn’t seem so futile if we celebrated more milestones when those we love achieve them.

We celebrate milestones along the way of our babies, like a first bath or a first food because it is the baby’s first, not because they will continue these things for the rest of their lives.

For example, though I know all the stages of grief, I must live them out each time tragedy strikes, no matter how many times I lose someone dear.

Why don’t we celebrate not just when one votes, but when one actually reads the voter handbook and civilly discusses controversial policies with neighbors and family?

Or when a friend writes her first chapter.

When a neighbor takes the class.

When a colleague starts a business.

Wouldn’t it be great if we supported couples- not just at their wedding when they are in health, but also later when they are in sickness?

What would it look like if we all celebrated the miracle of our breath-ins and outs- like my Yoga practicing friends do?

To breathe in and out- what a miracle!

What would it look like if our society celebrated the food and sharing meals every day, instead of viewing our essential nourishment as a hassle to be tackled?

What would it look like if we had a community where everyone had a safe place to share their gifts and vulnerabilities so that we could indeed find peace on earth?

What would it take to live this way?

Perhaps the only way this is possible is to imagine the person you like the least- the person who causes the most problems, is the most irritating, and spend quality time with them until you can find something endearing about them.

Perhaps that person is you.

Perhaps that is the start of peace.

Perhaps it’s impossible, or perhaps it’s simple.

The answer, I suspect, is already here. After all, “What has been is what will be, and what has been done is what will be done, and there is nothing new under the sun.”

“Tiger Livy” is Available Now!

Thank you for all your support! The e book, paperback and hardcopy are now available on Amazon or your local bookstore can order for you. If you’re in Central California, consider supporting Petunia’s Place or Vivily Vintage Handmade, as they carry the book there.

This book was inspired by my niece, Livy, who was diagnosed with a rare disease known as juvenile dermatomyositis or JM. But this work was also designed to help all children and their families struggling with chronic illness. To make this book, I worked with Livy’s family, doctors,  and some perfect strangers in order to provide a small bit of hope. Here is a media segment explaining more or go to tigerlivyproject.com to see more.

To our team’s knowledge, this is the first children’s book that attempts to discuss the mental, physical, and emotional challenges that come with any serious disease. The magic of this book is that it also touches on how one heals. Livy’s grit, imagination, medicine, nutrition, and love restore her health and transform her into a leader.

Thank you for all your support. It means the world to us!