How Should I Tell My Child They’re Autistic?

“How should I tell my child they’re autistic?”

-Many concerned parents

I cannot count how many parents have messaged me about this question. It’s so many that keeping track would depress me.

Some parents approach their child’s neurology almost like “the birds and the bees” talk. It feels weird and awkward. But of course, your child’s neurology is not something that should be awkward or a source of fear or shame. Why is it though? I mean, we would never fear telling a child she was diabetic or epileptic- NOT knowing those things causes more issues. The same is true for autism.

Some parents fear telling their child will limit them in some way; almost like uttering this truth will unleash some kind of power over the child. These parents treat sharing their child’s autism diagnosis  like characters in Harry Potter reacted to the name “Voldemort”. 

This kind of makes sense to me. 

Many parents are scared of what autism really means. They don’t know what to do about it, but they know it’s there. 

To call autism by its name somehow gives it more power, maybe? 

And maybe by not calling it by name, a child won’t be so “autistic-y”.

I say that tongue in cheek- but it baffles me how conflicted parents get about this. 

I told my child when he was about 4 because that’s when I first realized he is perfectly fine the way he is. I wished I had told him sooner.  If you know and your child is much older, please do not fret. But take a moment, read the rest of this post, and then tell them!

I started by explaining stimming because that’s how I noticed my child had a different processing system; it was my clue he might be autistic. I didn’t know what stimming was until an autistic adult shared it with me.

Stimming is how a person physically regulates their body when there is a lot of external input. It might be rocking, hand flapping, echolalia, galloping, etc. It explained so much about my child; everything fell into place after that. 

I realized that my son stims a certain way when it’s too loud. He stims differently when he’s excited about something. He stims another way when he is anxious. My son is mostly verbal, but when he is feeling big feelings, he really struggles to articulate his needs. His stims are not random or arbitrary, they are my clue to assist him when he isn’t verbal.

So to answer the question of how to tell your child they’re autistic I say: start with stimming. 

Explain what stimming is to your child (and any of their siblings). I wrote a book about it called The Case of Sensational Stims and it’s on Amazon now. Demonstrate how you stim (because you probably do), but explain that it’s very important for your autistic child because their brain processes information in a particular way. Their particular way has a name.

Their mind is autistic and those who aren’t autistic are called allistic. We all process information a bit differently. No one type is better or worse, they’re just different and we need to honor everyone’s brain (or neurology).

Boom. You did it!

Then… you keep lines of communication open. 

No, you don’t need to talk about it every day, but make sure you say the word autism. There’s not one thing to be ashamed of. Your child was born with a phenomenal mind.   

Ask your child(ren) what autism means to them. Learn from them. Learn with them, Coach them. And remember, autism presents differently in every person. Stims evolve over time. Some things that used to be hard get easier and vice versa. 

The best way to start is to figure out why it feels so uncomfortable for the parent. It’s usually because they don’t know much. Learn from #acutallyautistic people and buy my book on stimming on Amazon. It’s a great way to get started, if I do say so myself. 😉

Autism and Standard Pediatric Development

“Life is not linear. When you follow your own true north you create new opportunities, meet different people, have different experiences and create a different life.” -Ken Robinson
Autism usually doesn’t follow typical pediatric development and this is usually why parents are so alarmed at the possibility of an autism diagnosis. 

The autistic child is a-typical. They are the minority neurological type which means their way of processing the world falls outside the norm of neurological processing.

Autistic children tend to not develop typically, which is usually how parents are tipped off that their child is autisitc in the first place. 

When children fall outside of the standard development time frame of speaking, writing, walking, etc, parents are fearful (unless of course the milestone is met early, in which case their child is a genius). The fear of autism is largely rooted in ignorance and the way many medical professionals describe autism. They say things like “red flags” and “treating autism” and “suspect a neurological disorder” and other such turns of phrase that can scare an uninformed parent witless. 

Doctors are usually amazing, but the average pediatrician do not know much about autism save a few hours of (likely) outdated instruction from a textbook unless they have a personal relationship to an autistic person or took time out of their busy life to learn on their own. 

Development and growth of a child, especially an autistic one, should not be compared to that of a neurotypical child. But developmental milestones are based on the standard and anything that falls outside of the standard progression is almost always the concern.

I am not a medical doctor, so please do not use this for medical advice. My page is a starting point to get people’s mindset shifted. This exists to help people who care to reframe their thinking about neurodiversity.

This page is to help anyone who knows autistic people but doesn’t know what autism really means. Better questions to ask if your child falls outside typical developmental milestones might be:

Is my child learning?

Are they growing?

What do I know about autism?

Is my child distressed often over things that aren’t a big deal to me? Figure out what you know and why you think what you do! 

Usually parents notice sensory differences that prevent a child from interacting with his/her environment, which can prevent growth. And when this happens a parent will say “I don’t understand” but what this usually means is: “I liked this thing when I was their age”, or “other children love this”, or “I was told this is the right way and my kid isn’t falling in line”, or “this isn’t making them happy and it doesn’t make sense”, or “other kids are already doing this but my kid is not”.

The parents who struggle the most with the possibility of an autism diagnosis tend to be the ones who are unwilling to adjust their perspectives.
A struggling parent usually leads to a child that struggles.

An autistic child is a unique individual with their own needs. Figure out what they are. Once you meet their sensory needs and your child is regulated, watch them blossom. Enjoy your child for who they are, not who you imagined they would be.

Please like and share this post with anyone who might benefit.

Follow @sensationalstims on Instagram for daily tips and support!

Could My Child Be Autistic?

If you’re on this page, you’re either wondering if your child is autistic or has just been diagnosed. This page is here because when my child was first diagnosed and I was so fearful of what the “A” word meant for him and my family and our futures, I scoured the internet and library looking for answers. I put them all here for you. 

This blog is to help you understand autistic people better so you can help them thrive in a world that wasn’t designed for them. It’s to help you possibly prevent mistakes I made early on so that you don’t unintentionally harm your child. And mainly, this blog is to help anyone who knows an autistic person and genuinely wants to include them and make the world safer. 

First, breathe. Relax. You know that baby you wanted and hoped for and loved? They’re still there. You just paid such close attention you realized they process information differently than neurotypical people. Your child isn’t broken! You noticed their needs and processing differences. You’re a great parent for doing that! Even if you didn’t do it right away, that is ok. 

You probably noticed because their sensory processing is markedly different from your life experience and you began to wonder why. 

Perhaps the sensory world your child is exposed to is stressful, or exciting, or overwhelming, or something else. Again: you noticed! You didn’t just say “Oh stop being so dramatic!”

Or maybe you did, but you realized some things, no matter what, cause issues for your child and are impacting his/her daily life. Whether they’re autistic or not, you’re probably here because you know there is something different. 

These processing differences may be signs of autism, but if so, your child isn’t broken. This page is to explain what and how accommodations help a neurodivergent person thrive. We use appropriate terminology, unlearn harmful stereotypes and outdated terminology and practices, and evolve so that our loved one can be a happy, fulfilled person. Heck, you may even learn a bit about your own processing system or others. 

I am so glad you are here!

What are the Signs of Autism?

Are loud noises, bright lights, extreme hot or cold, strong smells, textures an extreme sensory experience for your child? Does he or she deeply enjoy or fear or melt down in these sensory experiences and it’s not like a neurotypical child? 

Does he or she love to get pressure (like a big squeeze or being in a tight space) or perhaps loathe hugs? 

Does he or she have unusual facial expressions for the situation (maybe doesn’t look excited when there’s a big surprise or perhaps appears overly emotional for a basic situation)?

Does he or she have language delays or quite exceptional at language for their age?

Does he or she have the ability to focus on one thing for an exceptional amount of time without getting bored or perhaps watch and rewatch certain scenes or shows for an amount longer than what you’ve done?

Does the person display struggles with knowing appropriate body distance between others in a social situation?

These are all indicators that your child might be autistic and if at all possible, a formal diagnosis is important and very helpful. Notice how these indicators were not referred to as a “red flag” or “a warning”. A diagnosis is helpful, but do not confuse autism with a life threatening illness. 

Autism is a processing difference, much like the difference between two computer types like a Mac and an IBM. Even though these computers can both do things, certain programs that work on one won’t work on another. Their interface is different. Perhaps you have a preference for one type or another. Obviously this is not a personal computer and I sincerely hope you won’t take your child back to the hospital because you wanted a Dell and not a Mac. Because the truth is, if your loved one is autistic, they were born that way. And you don’t need to mourn. It’s just different than what you thought. 

Think of all the things you loved about your baby. Think of all the ways in which they demonstrate their love for life. 

Imagine if the person or people who raised you thought, “if only they weren’t this way. I wish they were how I imagined they would be instead.”  Ouch. That would hurt. Maybe some of us reading have had that experience.

Hoping a child would “overcome” the way they were born is a terrible way to live and treat another. This page is to find ways to celebrate who your child is and help them thrive.